Malachi turned three months old yesterday, February 2nd. He is certainly growing. He is up to 7 lbs 13 oz! To let you know the latest on us...
We came down for a routine appointment for Malachi on Tuesday, January 22nd. Dr. Wearden was concerned about Malachi's cold and his saturations dropping at night and the new need for oxygen. They admitted him to the hospital that night, which we were completely unprepared for! We have been in Pittsburgh since. Malachi had a Lung Profusion scan (to measure lung pressure) on Wednesday, January 23rd. The test showed some difference in his lungs, but Dr. Wearden felt that a Catheterization would show the best pressure.
Malachi went in for the Cath on Thursday, January 24th. They found that his band has tightened. The blood flow to his lungs is getting more restricted, so that explains the need for more oxygen when he is sleeping.
After a long stay in the CICU, (because there were no beds upstairs),the Board (consisting of the Surgeons, Cardiologists, and CICU Doctors) all got together to discuss the best plan for Malachi. They decided that they wanted to monitor Malachi for the next two weeks see him gain weight and do the Glenn, which is his next surgery. (Routing the Superior Vena Cava Artery directly into his lungs.) We are staying at the Children's Home. It is a nice facility, but it is not home. Dr. Wearden would have sent us home, but he was uncomfortable with us living so far away.
Malachi has an appointment this Wednesday, February 6th, with the Surgery team. If he keeps gaining and looking good, they will schedule another appointment next week with the Cardiology team for the following week. After that appointment, they will begin to discuss the scheduling of his next surgery.
Please be praying that Malachi keeps growing and that the band will not get any tighter before the surgery is done. It is hard to not be home, but we are glad that things are moving towards getting Malachi's heart repaired. We will let you know when we hear anything new.
Thank you all for your prayers. May the Lord be glorified!
Love,
Philip, April, and Malachi
Philippians 4:4
2 comments:
i am glad that he is up to 8 POUNDS!!!! yeah he's gonna be a big healthy baby before too long. I'll get to kiss those precious cheecks. love and miss you!
phil, it was so wonderful to see you again at the wedding. i wish there would have been even more time to talk, but it was a joy to see you at all. april, we really wished that you could have been there and are looking forward to having you both there sometime in the future when all the friends are together. it must have been hard to have to stay at the hospital without being able to prepare. praying for you and anticipating good news about malachi.
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